Christmas Message from the Nerve Tumours UK team
13 December 2023
Dear Friends & Supporters,
I hope you are all keeping well, and looking forward to the Christmas festivities.
It has been another busy year for the charity, one in which we were sad to say goodbye to some members of the team, but also one in which we welcomed some new faces, and we were especially delighted to introduce a brand new post. And, we hope to be able to continue growing the team in 2024. As I have always stressed, the core function of the charity remains the funding of the network of regional nurses.
We have been working on expanding our website over the last year. After launching the GP’s App, we have now introduced a medical hub for allied healthcare professionals, and we are in the process of launching a Progressive Web App, so all of our information will be readily available at your fingertips. The App will officially be launched in the new year, followed by the integration of a ChatBot.
We have also run the second phase of our national awareness campaign across rail hubs, in May & November this year, accompanied by an online advertising campaign, and I have been delighted by the feedback from the NF community, both patients and healthcare professionals, and from the wider general public.
We introduced a week in the summer to raise awareness of NF2, as we feel it sometimes gets lost during the month of May, and we were delighted to be supported by the two national NF2 charities, NF2 Biosolutions UK & Europe and Can You Hear Us, promoting this event.
Once again, a huge thank you goes out to all of our fundraisers and donors, who have helped to fund our services over the past year. And also to the teams from St. Mary’s in Manchester, Guys & St. Thomas’ in London and the Specialist NF2 Service based at Addenbrooke's Hospital in Cambridge. We hugely appreciate their continued collaboration and support for the charity.
Please remember that we are here to help you, either with medical questions directed to the helpline, or any other question that the head office team can help to sort. No question is ever irrelevant, so do not hesitate in asking.
On behalf of the Trustees, the Specialist Nurses & Advisors, and the head office team here at Nerve Tumours UK, may I take this opportunity to wish you all a “Very Happy Christmas and New Year!”
With my very best wishes,
Karen
Filter News

Erin’s 24 hour charity live stream
Erin has NF1 and is raising awareness with a 24 hour live charity stream to Shine A Light on NF
Read More_370x280_800_600_s_c1.jpg)
Tate’s Shine A Light Bikeathon
Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!
Read More
Access to your GP
We want to hear from you… Help us improve services by completing a quick survey
Read More
London Marathon 2024 Team NTUK
Thank you and congratulations to Team NTUK for their marathon effort
Read More
Thomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
Read More_800_600_s_c1.png)
Meet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
Read More
Rare Disease Day 2024
Read our update on the events and meetings NTUK attended to help raise awareness of NF
Read More
Johnathan’s story
Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people
Read More_370x280_800_600_s_c1.jpg)
Jen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
Read More