Christmas Message from the Nerve Tumours UK team
13 December 2023
Dear Friends & Supporters,
I hope you are all keeping well, and looking forward to the Christmas festivities.
It has been another busy year for the charity, one in which we were sad to say goodbye to some members of the team, but also one in which we welcomed some new faces, and we were especially delighted to introduce a brand new post. And, we hope to be able to continue growing the team in 2024. As I have always stressed, the core function of the charity remains the funding of the network of regional nurses.
We have been working on expanding our website over the last year. After launching the GP’s App, we have now introduced a medical hub for allied healthcare professionals, and we are in the process of launching a Progressive Web App, so all of our information will be readily available at your fingertips. The App will officially be launched in the new year, followed by the integration of a ChatBot.
We have also run the second phase of our national awareness campaign across rail hubs, in May & November this year, accompanied by an online advertising campaign, and I have been delighted by the feedback from the NF community, both patients and healthcare professionals, and from the wider general public.
We introduced a week in the summer to raise awareness of NF2, as we feel it sometimes gets lost during the month of May, and we were delighted to be supported by the two national NF2 charities, NF2 Biosolutions UK & Europe and Can You Hear Us, promoting this event.
Once again, a huge thank you goes out to all of our fundraisers and donors, who have helped to fund our services over the past year. And also to the teams from St. Mary’s in Manchester, Guys & St. Thomas’ in London and the Specialist NF2 Service based at Addenbrooke's Hospital in Cambridge. We hugely appreciate their continued collaboration and support for the charity.
Please remember that we are here to help you, either with medical questions directed to the helpline, or any other question that the head office team can help to sort. No question is ever irrelevant, so do not hesitate in asking.
On behalf of the Trustees, the Specialist Nurses & Advisors, and the head office team here at Nerve Tumours UK, may I take this opportunity to wish you all a “Very Happy Christmas and New Year!”
With my very best wishes,
Karen
Filter News

William & Andrew’s NF1 Story
Andrew's using his own obstacles in life to inspire his son William on his NF1 journey.
Read More
First Diagnosis Survey
A survey to improve NF diagnosis support by gathering feedback on early experiences and concerns from those affected.
Read More_800_600_s_c1.jpg)
Working with the hospitality industry & creating safe spaces for everyone
Read More
Visible Differences: Changing The Narrative
Nerve Tumours UK joins multi-organisational workshop to enhance support for those with a visible difference
Read More
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More_800_600_s_c1.png)
Nerve Tumours UK joins the Neurological Alliance of Scotland
Nerve Tumours UK joins the Neurological Alliance of Scotland.
Read More_800_600_s_c1.png)
Brain scans to give crucial insight into childhood genetic disease
New funding secured for exciting new global research initiative.
Read More
Looking Back, Moving Forward: A Message from Our Charity Director
Read More
Oliver’s Blog
Oliver Bromley shares some personal experiences of visible difference, and how education and kindness can reduce stigma.
Read More