Christmas Message from the Nerve Tumours UK team
13 December 2023
Dear Friends & Supporters,
I hope you are all keeping well, and looking forward to the Christmas festivities.
It has been another busy year for the charity, one in which we were sad to say goodbye to some members of the team, but also one in which we welcomed some new faces, and we were especially delighted to introduce a brand new post. And, we hope to be able to continue growing the team in 2024. As I have always stressed, the core function of the charity remains the funding of the network of regional nurses.
We have been working on expanding our website over the last year. After launching the GP’s App, we have now introduced a medical hub for allied healthcare professionals, and we are in the process of launching a Progressive Web App, so all of our information will be readily available at your fingertips. The App will officially be launched in the new year, followed by the integration of a ChatBot.
We have also run the second phase of our national awareness campaign across rail hubs, in May & November this year, accompanied by an online advertising campaign, and I have been delighted by the feedback from the NF community, both patients and healthcare professionals, and from the wider general public.
We introduced a week in the summer to raise awareness of NF2, as we feel it sometimes gets lost during the month of May, and we were delighted to be supported by the two national NF2 charities, NF2 Biosolutions UK & Europe and Can You Hear Us, promoting this event.
Once again, a huge thank you goes out to all of our fundraisers and donors, who have helped to fund our services over the past year. And also to the teams from St. Mary’s in Manchester, Guys & St. Thomas’ in London and the Specialist NF2 Service based at Addenbrooke's Hospital in Cambridge. We hugely appreciate their continued collaboration and support for the charity.
Please remember that we are here to help you, either with medical questions directed to the helpline, or any other question that the head office team can help to sort. No question is ever irrelevant, so do not hesitate in asking.
On behalf of the Trustees, the Specialist Nurses & Advisors, and the head office team here at Nerve Tumours UK, may I take this opportunity to wish you all a “Very Happy Christmas and New Year!”
With my very best wishes,
Karen
Filter News
Lily: A little girl with a contagious smile
Learn all about Lily's NF1 diagnosis and how that led to incredible efforts to raise awareness and fundraise.
Read More
A New Collaboration: Ian Duggan British GT
Ian is racing in the British GT Championship, and will be sporting the NTUK Logo on his racing car and driving suit.
Read More
Lilly’s Story: Growing Up With NF1
In 2019, Lilly and her family featured in our ‘Shine a Light on Neurofibromatosis’ short film. Find out how she's getting on.
Read More
Improving the delivery of Genetic Results Survey
Survey: How did you receive your genetic results? Could we do it better?
Read More
Sonny’s NF1 story
Sonny, 3 years old, faces daily challenges but shows incredible strength, determination, and resilience. Read his story.
Read More
Great North Run 2026
Read more about this iconic half-marathon, and find out how to apply for 2027.
Read More
Manchester University NF1 MEK Inhibitors Research
Research: NF1 MEK Inhibitors and Learning
Read More