Children’s Tumor Foundation - NF Forum 2020 Moves Online!
19 June 2020
The Children's Tumor Foundation, in collaboration with NYU Langone Health, will be hosting its 2020 NF Forum online this year – responding to the coronavirus pandemic & to help protect the health of patients, families, caregivers and speakers.
This will be the first time ever that the forum is hosted online via zoom across four days this summer: June 25th, July 16th, August 13th, and September 17th. Presenting a unique opportunity for people around the world with Neurofibromatosis to tune in and take part!
The forum is a safe place for families and patients to learn more about Neurofibromatosis from experts around the world, covering the most up to date information on NF including; how to manage the symptoms of NF, information about clinical trials and updates on treatment strategies.
The NF forum also offers those who are living with Neurofibromatosis and their families to; connect, support and learn from each other whilst attending seminars on relevant topics & discussions on NF.
Find out how you can get involved in the events below:
(Note that all live events will take place at 12pm GMT - further info and insights will be available after the events)
June 25th: Poster Session
An interactive Q&A with the creators of some of the most exciting posters from this year’s virtual NF Conference. Clinical poster session moderated by Bruce Korf, MD, PhD + Science poster session moderated by Verena Staedtke, MD, PhD.
Register Here![](/images/common/48837248117_d395b9c7fc_o1024x768.png)
July 16th: Case Conference
A panel of expert clinicians will discuss two unique medical cases that address various medical complications seen in NF1.
Register Here![](/images/common/48837072816_83a68ea6bf_o1024x768.png)
August 13th: Clinical Research
Hear about where we have been and where we are going in NF1 research; we will also discuss results of recent trials.
Register Here![](/images/common/48836694403_88532ea2a0_o1024x768.png)
September 17th: The Impact of NF on Relationships, Learning, and School
Discussion of how NF1 impacts education (IEPs, learning disabilities, social-emotional issues).
Register Here![](/images/common/48837060826_abab7c0e25_o1024x768.png)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Embracing-complexityPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK joins the “Embracing Complexity” Coalition
Find out more about the coalition we have decided to join
Read More![](https://nervetumours.org.uk/images/made/images/common/UON-2Artboard-1_800_600_s_c1.png)
Researching NF1
Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.
Read More![](https://nervetumours.org.uk/images/made/images/common/MeganPage-Preview-800-x-500-px_800_600_s_c1.png)
Megan’s Journey
Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico
Read More![](https://nervetumours.org.uk/images/made/images/common/Aldo-Goes-to-Primary-SchoolPage-Preview-800-x-500-px_800_600_s_c1.png)
Aldo goes to Primary School
Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here
Read More![](https://nervetumours.org.uk/images/made/images/common/Eva-Page-Preview-800-x-500-px_800_600_s_c1.png)
Eva’s Races
Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Carls-story-Page-Preview-800-x-500-px_800_600_s_c1.png)
Carl’s Story in memory of his sister who had NF2
Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK-dolphinsPage-Preview-800-x-500-px_800_600_s_c1.png)
NTUK Dolphins at the Swim Serpentine 2019
Find out more about the incredible day for all involved at Hyde Park here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Rotary-JazzPage-Preview-800-x-500-px_800_600_s_c1.png)
Rotary’s Summer Evening Jazz Concert in aid of NTUK
Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Wrestling-done-1Page-Preview-800-x-500-px_800_600_s_c1.png)
K-Star Wrestling in aid of NTUK
Find out more about the successful wrestling event that took place in aid of NTUK
Read More