Children’s Tumor Foundation - NF Forum 2020 Moves Online!
19 June 2020
The Children's Tumor Foundation, in collaboration with NYU Langone Health, will be hosting its 2020 NF Forum online this year – responding to the coronavirus pandemic & to help protect the health of patients, families, caregivers and speakers.
This will be the first time ever that the forum is hosted online via zoom across four days this summer: June 25th, July 16th, August 13th, and September 17th. Presenting a unique opportunity for people around the world with Neurofibromatosis to tune in and take part!
The forum is a safe place for families and patients to learn more about Neurofibromatosis from experts around the world, covering the most up to date information on NF including; how to manage the symptoms of NF, information about clinical trials and updates on treatment strategies.
The NF forum also offers those who are living with Neurofibromatosis and their families to; connect, support and learn from each other whilst attending seminars on relevant topics & discussions on NF.
Find out how you can get involved in the events below:
(Note that all live events will take place at 12pm GMT - further info and insights will be available after the events)
June 25th: Poster Session
An interactive Q&A with the creators of some of the most exciting posters from this year’s virtual NF Conference. Clinical poster session moderated by Bruce Korf, MD, PhD + Science poster session moderated by Verena Staedtke, MD, PhD.
Register Here
July 16th: Case Conference
A panel of expert clinicians will discuss two unique medical cases that address various medical complications seen in NF1.
Register Here
August 13th: Clinical Research
Hear about where we have been and where we are going in NF1 research; we will also discuss results of recent trials.
Register Here
September 17th: The Impact of NF on Relationships, Learning, and School
Discussion of how NF1 impacts education (IEPs, learning disabilities, social-emotional issues).
Register Here
Filter News
#BackThe1in6
Read the My Neuro Survey findings from the Neurological Alliance & sign the petition for a Neuro Taskforce to deliver change
Read More
Austin’s NF1 story
Austin's mother, Katie, describes how local biker clubs have helped to support Austin since his NF1 diagnosis
Read More
NTUK Comedy Circuit 2022
Three more dates for your diary: Manchester 14/6, Newcastle 12/7, Glasgow 14/7. Altogether now: "Happy birthday NTUK!"
Read More
RideLondon-Essex 2022
Thank you to our RideLondon-Essex 2022 cyclists! Click here for some great photos from the day
Read More
Pat’s Triathlon Challenge
Pat is taking on a 3 day triathlon style challenge to raise awareness & funds for Neurofibromatosis research & support
Read More
World Neurofibromatosis Type 2 Day and 40 Years of NTUK
A celebration and call out to get involved, ask questions and join the community with Emily Owen
Read More
Shine A Light 2022 Success!
The Shine A Light 2022 campaign had over 200 buildings around the UK & the Republic of Ireland lit up in blue!
Read More
NF1 & our Xander
Xander's parents have a unique fundraiser raffle, especially for LITRPG fans, with the aim of raising awareness of NF
Read More
RideLondon FreeCycle Sunday 29th May
Join Nerve Tumours UK on the official RideLondon Day 29th May 2022
Read More