Childhood Neurological Conditions Survey
30 September 2020
The British Paediatric Neurology Association and James Lind Alliance have launched a survey to define the Top 10 unanswered questions about the treatment of childhood neurological conditions, where there is uncertainty about the effectiveness of treatments.
Children and young adults (aged 0-25) with neurological conditions are invited to suggest your questions about treatments, therapies or procedures aimed at improving your health and wellbeing. Help shape the future of research into Childhood Neurological Conditions by sharing your experiences. Anyone affected by Neurofibromatosis is welcome to take part; patients, families, friends and carers.
It’s important our community shares its voice to ensure that the surveys and workshops carried out by, The British Paediatric Neurology Association and James Lind Alliance, are representing those whose lives are affected by NF.
The eventual aim is to turn these priorities into funded research questions that have the potential to go on to improve the lives of children with Neurofibromatosis and other neurological conditions.
If you are interested in taking part in this survey click the button below:
Nerve Tumours UK is not responsible for any data collection or content of the research.
Filter News
NF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
Read MoreSally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
Read MoreNational NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
Read MoreNF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
Read MoreMindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read MoreAdam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read MoreWe know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read MoreThe New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read MoreLondon Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More