Childhood Neurological Conditions Survey
30 September 2020
The British Paediatric Neurology Association and James Lind Alliance have launched a survey to define the Top 10 unanswered questions about the treatment of childhood neurological conditions, where there is uncertainty about the effectiveness of treatments.
Children and young adults (aged 0-25) with neurological conditions are invited to suggest your questions about treatments, therapies or procedures aimed at improving your health and wellbeing. Help shape the future of research into Childhood Neurological Conditions by sharing your experiences. Anyone affected by Neurofibromatosis is welcome to take part; patients, families, friends and carers.
It’s important our community shares its voice to ensure that the surveys and workshops carried out by, The British Paediatric Neurology Association and James Lind Alliance, are representing those whose lives are affected by NF.
The eventual aim is to turn these priorities into funded research questions that have the potential to go on to improve the lives of children with Neurofibromatosis and other neurological conditions.
If you are interested in taking part in this survey click the button below:
Nerve Tumours UK is not responsible for any data collection or content of the research.
Filter News

Graham’s Super Nine Shines A Light on NF
Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK
Read More
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More
Nerve Tumours UK Conference 2021
The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees
Read More
Tricia’s Wingwalk fundraiser
Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1
Read More
Stuart’s Schwannoma Story Part One
Stuart describes how certain symptoms led to a Schwannoma discovery
Read More