Changing Faces Impact of Covid Survey
26 January 2021
Due to the Covid19 crisis, we know that many people with visible difference are self-isolating and trying to stay at home wherever possible. With another lockdown upon us and the return to work and social situations looming, many of you are feeling increasingly anxious about the current situation.
That’s why if you or a loved one has a visible difference; Changing Faces want to hear from you. Share your experiences of the current pandemic and help to improve support now and in the future for people with visible difference. Positive or negative or a mixture, it’s important to share. The survey takes only 5-10 minutes to complete and is a big help to our community.
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TSL’s Charity of the Year
Specialist Nurse Tracey Kenyon launches TSL’s corporate funding to introduce NTUK & welcome guest of honour, 2 year old Evie
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Online – Accessibility – We have the tools to help!
The NTUK website has accessibility tools to give you easier access to online & digital content
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My life with Pheo
This story, written by someone with NF1, describes symptoms leading to a phaeochromocytoma diagnosis
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Resources Survey: Initial Diagnosis 2023
We received many responses to our survey asking what would you have found helpful after your initial diagnosis
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Community Fundraising Call Out
Calling all community fundraisers - we need your help, please!
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Owen family Awareness Event
The event featured guest speaker Prof. Meena Upadhyaya OBE, Member of our Board of Trustees & Medical Advisory Board
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Running for Wilbur
Tim is running the Guildford 10k in October, to show support to his son Wilbur who has NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Alice_Allsop_370x280_800_600_s_c1.jpg)
Alice’s NF studies
Alice is researching healthcare experiences of individuals with NF1 for her Genetic & Genomic Counselling MSc
Read More![](https://nervetumours.org.uk/images/made/images/common/CAR_parent_toolkit_1_370x280_800_600_s_c1.jpg)
Centre for Appearance Research - The Parenting Toolkit
Research evaluation to find out how effective ‘The Parenting Toolkit’ is at supporting parents of children with NF
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