Changing Faces Impact of Covid Survey
26 January 2021
Due to the Covid19 crisis, we know that many people with visible difference are self-isolating and trying to stay at home wherever possible. With another lockdown upon us and the return to work and social situations looming, many of you are feeling increasingly anxious about the current situation.
That’s why if you or a loved one has a visible difference; Changing Faces want to hear from you. Share your experiences of the current pandemic and help to improve support now and in the future for people with visible difference. Positive or negative or a mixture, it’s important to share. The survey takes only 5-10 minutes to complete and is a big help to our community.
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NF1 & our Xander
Xander's parents have a unique fundraiser raffle, especially for LITRPG fans, with the aim of raising awareness of NF
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RideLondon FreeCycle Sunday 29th May
Join Nerve Tumours UK on the official RideLondon Day 29th May 2022
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RAISING THE ROOF COMEDY NIGHT
First night on the NTUK 40 years Comedy Circuit 2022 at London's Backyard Comedy Club
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Chloe’s NF1 story
Chloe gives an honest assessment about coming to terms with having NF1 and how it has made her determined & strong
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“Happy Easter”
A message from Karen, our Charity Director, wishing you a very Happy Easter!
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Lisa helps Shine a Light on Neurofibromatosis in Belfast
Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May
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Alex’s NF1 story
Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications
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Sumeeth’s Schwannoma story
Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis
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Laura’s NF1 story
Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1
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