Changing Faces Impact of Covid Survey
26 January 2021
Due to the Covid19 crisis, we know that many people with visible difference are self-isolating and trying to stay at home wherever possible. With another lockdown upon us and the return to work and social situations looming, many of you are feeling increasingly anxious about the current situation.
That’s why if you or a loved one has a visible difference; Changing Faces want to hear from you. Share your experiences of the current pandemic and help to improve support now and in the future for people with visible difference. Positive or negative or a mixture, it’s important to share. The survey takes only 5-10 minutes to complete and is a big help to our community.
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Union Chapel London Comedy night
Check out these superb photos from our final comedy night of the year
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Joanna’s story
Joanna highlights the importance of women with NF1 receiving mammograms, and being able to train for the 2023 London Marathon
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Mobile Device Usage by Young Children with Special Educational Needs (SEN) or Disabilities in Their Home
Research: exploring current use of mobile devices in the home - parents' perspectives & experiences
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NF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
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Sally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
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National NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
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NF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
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Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
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Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
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