Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News

Pipers Rocks
Read about Pipers School amazing Rocktastic fundraising efforts for Nerve Tumours UK
Read More
Your NF questions answered directly from the Top!!
Get answers to your NF questions directly from our medical advisors
Read More
Planning for a Family - Elena & Nicks Story
Elena describes their journey using Preimplantation Genetic Diagnosis (PGD) to prevent passing on NF1 to their baby.
Read More_Clinical_Lead_–_NF2_MidlandsEast370x280_800_600_s_c1.jpg)
Statement by Juliette Buttimore Clinical Lead Nurse– NF2 Midlands/East
A statement on coronavirus by Juliette Buttimore Lead Specialist NF2 Nurse at Addenbrooke's Hospital in Cambridge
Read More
Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life
Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!
Read More
Tom GK in Lockdown
NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile
Read More