Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News

Thinking Forward to 2021 - A Message from our Charity Director
A message from Karen our Charity Director on looking forward to the year ahead
Read More
Rarefest 2020
RAREfest20: a free virtual, interactive science, technology, advocacy & arts exhibition with a rare twist. Visit exhibition
Read More
Kebabathon for Nerve Tumours UK
Find out why Des is taking on this Mammoth Meat Mission for Nerve Tumours UK
Read More
Coronavirus and your Mental Health
Mind offers support and advice to help you cope with the impacts of Coronavirus on your mental health and wellbeing.
Read More
2nd Lockdown Announcement
A message from Karen our Charity Director on a 2nd national lockdown - we're here for you
Read More
Dexter’s Story
A journey of acceptance with NF1 and understanding that what makes us different from one another is a gift.
Read More
#OneMoreNurse
Help support our Campaign, we need your ongoing support now more than ever to continue our vital Specialist NF Network
Read More