Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News
Christian’s Story
Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!
Read MoreTate’s Shine A Light Marathon
Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him
Read MoreVirtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
Read MoreConnection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
Read MoreRare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
Read MoreKate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
Read MoreAlex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
Read MoreA Colourful 5K Challenge
Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.
Read MoreOur NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!
Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!
Read More