Centre for Appearance Research (CAR) - Somali Heritage & NF Study
19 May 2021
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England in Bristol, want to hear from people of Somali heritage who have nerve tumours affecting the face. This research will be crucial for informing the development of future support for Somali people with appearance-altering conditions, like nerve tumours. To find out more or to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Further details of the study
Bruna Costa, a researcher and trainee health psychologist at CAR, has launched an interview study to explore the experiences of Somali people with a visible facial difference, like nerve tumours.
Interviews will be remote (i.e., over the phone, on Microsoft Teams or Zoom) and can be in English or Somali. Interviews will cover several topics about the psychosocial impact of living with a visible facial difference.
Findings from this study will be important in helping shape the development of future support for Somali people affected by visible differences.
If you have any questions about the study or would like to take part, please contact Bruna: bruna.oliveiracosta@uwe.ac.uk
Filter News

Medical Photography of dermatological conditions - research
Research study: Patient perceptions of medical photography of dermatological conditions
Read More
#BackThe1in6
Read the My Neuro Survey findings from the Neurological Alliance & sign the petition for a Neuro Taskforce to deliver change
Read More
Austin’s NF1 story
Austin's mother, Katie, describes how local biker clubs have helped to support Austin since his NF1 diagnosis
Read More
NTUK Comedy Circuit 2022
Three more dates for your diary: Manchester 14/6, Newcastle 12/7, Glasgow 14/7. Altogether now: "Happy birthday NTUK!"
Read More
RideLondon-Essex 2022
Thank you to our RideLondon-Essex 2022 cyclists! Click here for some great photos from the day
Read More
Pat’s Triathlon Challenge
Pat is taking on a 3 day triathlon style challenge to raise awareness & funds for Neurofibromatosis research & support
Read More
World Neurofibromatosis Type 2 Day and 40 Years of NTUK
A celebration and call out to get involved, ask questions and join the community with Emily Owen
Read More
Shine A Light 2022 Success!
The Shine A Light 2022 campaign had over 200 buildings around the UK & the Republic of Ireland lit up in blue!
Read More
NF1 & our Xander
Xander's parents have a unique fundraiser raffle, especially for LITRPG fans, with the aim of raising awareness of NF
Read More