Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
![](/images/common/Billy-Logan-NF1-Story-NTUK-1024x768.png)
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Professor_Benjamin_Housden__Dr._Megan_Stevens__University_of_Exeter_370x280_800_600_s_c1.jpg)
New ways to treat NF1 tumours with existing drugs
Researchers at the Living Systems Institute, University of Exeter, UK are researching new ways to treat NF1 tumours
Read More![](https://nervetumours.org.uk/images/made/images/common/Easter_370x280-01_800_600_s_c1.png)
Easter Message
A message from Karen, our Charity Director, wishing you a very Happy Easter!
Read More![](https://nervetumours.org.uk/images/made/images/common/Workplace_resources_preview_370x280_800_600_s_c1.jpg)
Equality, Diversity and Inclusion in the Workplace
Nerve Tumours are here to support you in the workplace: iNForm; workplace equality research & creating an inclusive workplace
Read More![](https://nervetumours.org.uk/images/made/images/common/Wayne_Littlewood_2_370x280_800_600_s_c1.jpg)
Wayne’s World of Marathons
Read about Wayne's world: marathons, running a wedding fayre business with wife Leanne and their son Harley who has NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/London_Marathon_2023_preview_370x280_800_600_s_c1.jpg)
Team NTUK London Marathon 2023
Meet some of our runners and read their inspiring marathon motivation stories
Read More![](https://nervetumours.org.uk/images/made/images/common/Pip_Vilday_running_vest_370x280_800_600_s_c1.jpg)
Pip’s London Marathon
Pip describes life with NF1 & limited vision and his motivation to run the London Marathon
Read More![](https://nervetumours.org.uk/images/made/images/common/image_(48)_370x280_800_600_s_c1.jpg)
The Scottish Parliament Rare Disease Day Online Reception 15/03/2023
NTUK attended the Scottish Parliament Rare Disease Day online reception
Read More![](https://nervetumours.org.uk/images/made/images/common/Screenshot_2023-03-03_at_11.20.57_370x280_800_600_s_c1.jpg)
Support Derry’s and Dan’s Marathon Run for NTUK
Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
Read More![](https://nervetumours.org.uk/images/made/images/common/0BCDA8DF-DF60-47D5-A705-BB6EE3A5BBEF_370x280_800_600_s_c1.jpg)
Ragbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
Read More