Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
![](/images/common/Billy-Logan-NF1-Story-NTUK-1024x768.png)
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/PoppyPage-Preview-800-x-500-px_800_600_s_c1.png)
Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
Read More![](https://nervetumours.org.uk/images/made/images/common/eden-baby_800_600_s_c1.jpg)
EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
Read More![](https://nervetumours.org.uk/images/made/images/common/EllaPage-Preview-800-x-500-px_800_600_s_c1.png)
Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
Read More![](https://nervetumours.org.uk/images/made/images/common/Grace-colourPage-Preview-800-x-500-px_800_600_s_c1.png)
Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
Read More![](https://nervetumours.org.uk/images/made/images/common/Helpful_Charities_800x500_preview_800_600_s_c1.jpg)
Helpful Charities
Find some of the other helpful charities that may be able to support you here
Read More![](https://nervetumours.org.uk/images/made/images/common/Harvey-Page-Preview-800-x-500-px_800_600_s_c1.png)
Sophia and Harvey’s story
"Despite all that, Harvie is a happy little boy who enjoys nursery and loves his favourite things"
Read More![](https://nervetumours.org.uk/images/made/images/common/Lucys-StoryPage-Preview-800-x-500-px_800_600_s_c1.png)
Lucy’s Story
"I love him, and I couldn't be without him, regardless of whether he was sick or healthy."
Read More![](https://nervetumours.org.uk/images/made/images/common/JayceePage-Preview-800-x-500-px_800_600_s_c1.png)
Jaycee’s Story
Have a read of Jaycee's incredible story and how she has overcome some major difficulties in her life.
Read More