Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
![](/images/common/Billy-Logan-NF1-Story-NTUK-1024x768.png)
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
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Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
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Live Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
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Talking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
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Family Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
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All Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
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Sharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
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Participant Experiences of the 100,000 Genomes Project
Read more about participant's experiences of partaking in the study that sequenced 100,000 genomes from around 85,000 people
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Meet our ASICS London 10k runners
Good luck to all our runners taking part in the British ASICS 10K this Sunday!
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