Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing
Find out more about the debate recently undertaken at The Royal Society here:
Read MoreAppearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
Read MoreJane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read MoreSarah’s Story
Sarah has NF1 and works full time for the NHS check out her intriguing story here
Read MoreLaura’s Story
Read about Laura's experience of undergoing surgery to remove a tumour from her spine here:
Read MoreVisible Difference Equality Law Research: summary of findings
Find out more about the results here:
Read MoreThe Galloway Family and their “amazing” four year old Ruby
Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.
Read More“Framing the face: History, Emotion, Transplantation” a blog from James Partridge
Find out more about the blog and what is concerns here:
Read MoreA Spooktacular Halloween day for NTUK
Find out more about the wonderful fundraising event here:
Read More