Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
![](/images/common/Billy-Logan-NF1-Story-NTUK-1024x768.png)
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/DSC_0096_London_Marathon_2019_-_Group_photo_preview_website_370x280_800_600_s_c1.png)
A Big “Thanks” for Team Nerve Tumours UK running the London 2020 Marathon!
We want to give a great big thank you to all of you who took part in this year's Virtual London Marathon!
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_video_thumbnail_high_res_370x280_800_600_s_c1.png)
How To Use Lipspeakers – Support For Those Affected By Hearing Loss
Frances Harris at Bridge Lipspeaking shares how lipspeaking can help those with hearing loss or total deafness caused by NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Oxford_University_(Naomis_photo)_370x280_800_600_s_c1.png)
Living with Neurofibromatosis Type 1: An Anthropological Study
Get involved and share your story to help increase cross-cultural understanding and awareness of NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Nimo_NF1_Story_370x280_preview_800_600_s_c1.png)
Nimo’s NF1 Story
Read Nimo's incredible journey of coming to terms living with NF1 & how Nerve Tumours UK has changed her life for the better
Read More![](https://nervetumours.org.uk/images/made/images/common/Georgia_Schwannoma_Story_370x280_800_600_s_c1.png)
Georgia’s Schwannoma Story
Read Georgia's inspirational Schwannoma story and how she had to fight for her diagnosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Screenshot_2020-09-30_Changing_Faces_»_New_research_on_experiences_of_men_with_visible_differences_370x280_800_600_s_c1.png)
Voices of Visible Difference #YoureNotAlone Men’s Campaign
Two-thirds of men with visible difference are affected in their day to day life. Read more
Read More![](https://nervetumours.org.uk/images/made/images/common/Childhood_Neurological_Conditions_Survey_Website_Header_370x280_800_600_s_c1.png)
Childhood Neurological Conditions Survey
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Karen_Portrait_Colour_370x280_2_800_600_s_c1.jpg)
We’re Here for You, Our NF Community.
A big thank you from Karen our Charity Director - your support has been amazing!
Read More![](https://nervetumours.org.uk/images/made/images/common/Global_Genes_Virtual_event_370x280_800_600_s_c1.jpg)
Global Genes LIVE!
Join Global Genes September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit.
Read More