Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Tom_Moran_wedding_day_370x280_800_600_s_c1.png)
Thomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(41)_800_600_s_c1.png)
Meet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
Read More![](https://nervetumours.org.uk/images/made/images/common/fb_eventcover1200_628_-26540595-e1708475536938_800_600_s_c1.png)
Rare Disease Day 2024
Read our update on the events and meetings NTUK attended to help raise awareness of NF
Read More![](https://nervetumours.org.uk/images/made/images/common/77529945_1705140784649954_r__1200x900_with_RDD_logo_1_800_600_s_c1.jpg)
Johnathan’s story
Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people
Read More![](https://nervetumours.org.uk/images/made/images/common/image2_(3)_370x280_800_600_s_c1.jpg)
Jen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(2)_800_600_s_c1.png)
Charlotte & Evie’s story
'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(5)_800_600_s_c1.png)
Luke’s Story
Luke had NF1 since childhood. Now an adult, surgery last year has enabled him to play football and do whatever he wants
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(1)_800_600_s_c1.png)
Charlotte’s Story
When Charlotte was 6, she was diagnosed with NF1, along with her brother & dad. Now she is on a mission to raise awareness
Read More![](https://nervetumours.org.uk/images/made/images/common/cover_image_with_Manchester_Uni_logo_370x280_800_600_s_c1.jpg)
Eden P for healthcare professionals
Healthcare professionals, who provide support to expectant parents with NF1 are invited to take part in the Eden P study
Read More