Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Northern-ireland-shave-offPage-Preview-800-x-500-px_800_600_s_c1.png)
“Charity Shave Off” for NF in Northern Ireland
Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:
Read More![](https://nervetumours.org.uk/images/made/images/common/blackpool-tower-blackpool-magic-conventionPage-Preview-800-x-500-px_800_600_s_c1.png)
Blackpool Magic Convention 2020
Find out more about the convention in aid of NTUK and how you can get involved here:
Read More![](https://nervetumours.org.uk/images/made/images/common/2019-reviewPage-Preview-800-x-500-px_800_600_s_c1.png)
Reflections on 2019
Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:
Read More![](https://nervetumours.org.uk/images/made/images/common/helen-and-pauline-Page-Preview-800-x-500-px_800_600_s_c1.png)
Helen’s Story as told by her Mum Pauline
Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:
Read More![](https://nervetumours.org.uk/images/made/images/common/NicolaPage-Preview-800-x-500-px_800_600_s_c1.png)
Nicola’s NF2 Journey
Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:
Read More![](https://nervetumours.org.uk/images/made/images/common/James-partidge-article-novemberPage-Preview-800-x-500-px_800_600_s_c1.png)
Making the Future of Work inclusive of persons with disability
Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace
Read More![](https://nervetumours.org.uk/images/made/images/common/carolynPage-Preview-800-x-500-px_800_600_s_c1.png)
The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing
Find out more about the debate recently undertaken at The Royal Society here:
Read More![](https://nervetumours.org.uk/images/made/images/common/CARDesktop-1600-x-900-px-copy_800_600_s_c1.png)
Appearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
Read More![](https://nervetumours.org.uk/images/made/images/common/Jane-francesPage-Preview-800-x-500-px_800_600_s_c1.png)
Jane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read More