Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News

OneMoreNurse joins the NTUK team in Leeds
We're delighted to announce our new Specialist NF Nurse for Leeds, find out more
Read More
The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!
Check out the year's first major running event - see how our NTUK running team got on!
Read More
Alex’s 12 months of Running
Alex has completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!
Read More
Colin’s West Highland Walk for NF
Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.
Read More
To Infinity & Beyond!
Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!
Read More
Runderpants Is Back!
Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!
Read More
TABI (Teen Appearance and Body Image) - CAR Research Study
Find out how you can take part in the Centre for Appearance Research's study for Young People
Read More
Nerve Tumours UK Challenge Yourself Week
Find out how you can get involved this summer with some of the biggest and greatest challenge events in the UK
Read More
Andrew’s NF1 Story
Read about Andrews inspirational NF1 story and how he wants to inspire others to achieve their goals!
Read More