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All Aboard the Blatchington Branch Fundraiser for NTUK!

19 July 2019

All Aboard the Blatchington Branch Fundraiser for NTUK!

Martin Murdoch has just completed one of the most unique fundraisers we have ever seen! 

Taking part on the Blatchington Branch "a privately owned 5 inch gauge garden railway in East Sussex" built by Martin himself, was opened to the public where people could donate money in return for riding the rails with Martin at the helm!

Track plan of the Blatchington branch

Martin has raised a considerable amount of money for NTUK and we would all like to thank him for his efforts and also congratulate him on completing such an impressive project!

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Jonny’s Story

Jonny has chosen to open up and share his incredibly brave battle with Cancer over the past year, find out more here:

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James on Tour

James Wiggin is taking on the Tour de France on behalf of Nerve Tumours UK – or at least a part of it.

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Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF1 Meeting in Manchester

Have a read what was talked about at this year's National NF1 Meeting in Manchester

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Let’s Go Regional/ Let’s Go Outside

Read about the website that offers new exciting opportunities to help you find a fundraiser/event that is most suited to you

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Meet Harley

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Funny Peculiar

Peculiar Productions has chosen to donate all their proceedings to NTUK this year! Find out more:

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Christmas Card Competition 2019

Check out this year's Christmas Card Competition and how to enter

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Sunflower lanyards to support patients and visitors with hidden disabilities

Read about the new lanyards being given out at Heathrow, Sainsbury's and Gatwick to help support those with disabilities

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NTUK attends Small Charity Week

Nerve Tumours UK attended Small Charity Week, find out more about the week and why we attended here:

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

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Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK