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Alex’s 12 months of Running

22 July 2021

Alex has completed his epic 12 months of running, racing in 8 out of the 10 planned events as 2 had unfortunately been cancelled. Helping to shine a light for NF across the country by running a truly impressive total distance of over 80km, he successfully completed the races below:

  • Chester Marathon October 3rd, 2021 (3hr 57min 29 sec)
  • Aintree 10km July 21st, 2019 (43.05) finished 31st.
  • Wigan 10km September 1st, 2019 (43.33) finished 167th
  • Southport 10km September 22nd, 2019 (42.37) finished 91st
  • Rainford 10km October 6th 2019 (43.42) finished 29th
  • Beat the reaper 10km October 20th 2019 (40.50) finished 8th
  • Mad Dog 10km February 9th, 2020, cancelled due to storm Ciara.
  • Chester 10k March 8th, 2020 (40.17) finished 101st (4562)
  • Chester half marathon September 19th 2021 
  • Southport half marathon June 28th, 2020, finished 139th (1088)
  • Chester 10k July 18th finished 150th (2233)

Alex took on this challenge to help support the wider NF community as both himself and his daughter Bella have NF1.

Alex took on this challenge to help support the wider NF community as both himself and his daughter Bella have NF1.

"I was diagnosed with NF1 at an early age in what was a challenging time for myself and my parents. As I have got older, I've had several operations to remove lumps from my arm and knee. "

–

In December I welcomed my beautiful daughter with my wife Sarah. I had a feeling from day one that she had the NF gene due to the presence of her birthmarks, this was later confirmed after a number of blood tests.

Alex has always been fond of running, finding it a great way to get fit and stay motivated and the perfect way to help raise funds to support Nerve Tumours UK.

I want to do these runs to help raise awareness for NF and to further support the work Nerve Tumours UK do, therefore ensuring a bright future for my daughter and everyone else who has NF.

Support Alex’s incredible running efforts

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World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social

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Find out how our Garden Runners got on this World Neurofibromatosis Awareness Day - May 17 2021

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Virtual Medical Meetings

Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend

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Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

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Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

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Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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