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A Spooktacular Halloween day for NTUK

04 November 2019

A Spooktacular Halloween day for NTUK

The Claims Teams at Alan Boswell Group in Norwich and Cambridge held a Spooktacular Halloween Day to raise money for Nerve Tumours UK. The day itself was a wonderful event which saw some magnificent and some utterly terrifying costumes on show as well as several expertly carved pumpkins.

The money raised is being donated toward Sharon Theobald and her husband Ceri's London Marathon run next year. They are both running in memory of Sharon's late brother Jason as well as Sharon's brother Neil and niece, Ava Lily who are both affected by NF1. 

In true Halloween style there were also a whole host of spooky treats available

Everyone at Nerve Tumours UK would like to thank Sharon, Ceri and the Claims Team for supporting our charity with their wonderful fundraising event 😊

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Olivia’s NF1 story

Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses

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Eashan’s NF1 story

'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.

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Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle

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World Mental Health Day 2023

NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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