A Magical Weekend
21 February 2020
Each year Blackpool Magic Convention welcomes a line-up of international, award winning magicians, illusionists and acts who are some of the biggest names in the world of Magic and this year as well Nerve Tumours UK as there chosen charity.
With 5,000+ people attending the convention, our main aim was raising awareness.
One of the people we met was John Baird, who posted on Facebook: “I never knew about this charity, even though I have NF1. It came as a surprise while attending the Convention, and the information given to me was a big help.” This shows how important the task of raising awareness is.
We had amazing support from the Convention organisers and from the magicians themselves.
One magician, Phileas Flash invited us to his balloon workshop as he made a life size model of one of the organisers who is affected by NF1, giving us a platform to directly present the charity on stage.
We were also honoured by a visit to our stand by Uri Geller.
Our community had special guest tickets for the UK Family Entertainer of the Year Event, which was attended by the Paterson family, who have been phenomenal supporters of Nerve Tumours UK. Also attending were St Vincent's School for Sensory Impairment and Other Needs, so this was another opportunity to recognise the importance of issues surrounding Neurofibromatosis and other genetic conditions.
Our main fundraising activity was a raffle for a Golden Ticket for the 2021 Blackpool Magic Convention and we sold a total of 501 Raffle tickets.
Filter News
New research into non-discrimination law
Durham University is looking for participants who look different due to their health complications. such as NF.
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Letter from our new Chair
A letter detailing the vision of our new chair, and the future of the charity.
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Launch of Nerve Tumours UK
Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.
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NF1 research award first for UK consultant
Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.
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Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
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EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
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Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
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Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
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Helpful Charities
Find some of the other helpful charities that may be able to support you here
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The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!
Check out our film & view the results from the film festival here:
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2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
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A Gamble Across Britain
James will be cycling the length of the country this September- that's 980 miles! Find out more here:
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