A Magical Weekend
21 February 2020
Each year Blackpool Magic Convention welcomes a line-up of international, award winning magicians, illusionists and acts who are some of the biggest names in the world of Magic and this year as well Nerve Tumours UK as there chosen charity.
With 5,000+ people attending the convention, our main aim was raising awareness.
One of the people we met was John Baird, who posted on Facebook: “I never knew about this charity, even though I have NF1. It came as a surprise while attending the Convention, and the information given to me was a big help.” This shows how important the task of raising awareness is.
We had amazing support from the Convention organisers and from the magicians themselves.
One magician, Phileas Flash invited us to his balloon workshop as he made a life size model of one of the organisers who is affected by NF1, giving us a platform to directly present the charity on stage.
We were also honoured by a visit to our stand by Uri Geller.
Our community had special guest tickets for the UK Family Entertainer of the Year Event, which was attended by the Paterson family, who have been phenomenal supporters of Nerve Tumours UK. Also attending were St Vincent's School for Sensory Impairment and Other Needs, so this was another opportunity to recognise the importance of issues surrounding Neurofibromatosis and other genetic conditions.
Our main fundraising activity was a raffle for a Golden Ticket for the 2021 Blackpool Magic Convention and we sold a total of 501 Raffle tickets.
Filter News
_370x280_800_600_s_c1.jpg)
Oxford’s John Radcliffe Hospital celebrate NF2 Awareness Day
We set out to promote and educate people about NF2 & the service offered in Oxford & Southwest Region for patients
Read More
Care Quality Commission survey
Take part - if you are from an ethnic minority, have a long term physical condition & live in selected SW London boroughs
Read More
CAR research family planning decision making
This CAR UWE research explores family planning & decision making for people with a visible difference which can be inherited
Read More_skyline_370x280_800_600_s_c1.jpg)
Shine A Light 2024
The Shine A Light 2024 campaign had 133 buildings around the UK & the Republic of Ireland lit up in blue!
Read More
Guidance on sudden hearing loss in NF2-related Schwannomatosis (NF2-SWN)
Symptoms, diagnosis & treatment of sudden hearing loss, from Juliette Buttimore, Nurse Practitioner NF2 Service Addenbrooke's
Read More
NF2 Day 2024 by Emily Owen
A reflective poem for World NF2 Day, to celebrate people living with NF2
Read More
Connor’s NF2 story
Connor's mum Tracy's maternal instincts proved invaluable when fighting to get Connor's symptoms investigated
Read More
Jo’s Shine A Light Family Fun Day
The family fundraiser was supported by Dr Shruti Garg, member of the Nerve Tumours UK Medical Advisory Board
Read More
Erin’s 24 hour charity live stream
Erin has NF1 and is raising awareness with a 24 hour live charity stream to Shine A Light on NF
Read More
The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!
Check out our film & view the results from the film festival here:
Find out more
2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
Find out more
A Gamble Across Britain
James will be cycling the length of the country this September- that's 980 miles! Find out more here:
Find out more