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A Magical Weekend

21 February 2020

Each year Blackpool Magic Convention welcomes a line-up of international, award winning magicians, illusionists and acts who are some of the biggest names in the world of Magic and this year as well Nerve Tumours UK as there chosen charity. 

With 5,000+ people attending the convention, our main aim was raising awareness.

One of the people we met was John Baird, who posted on Facebook: “I never knew about this charity, even though I have NF1. It came as a surprise while attending the Convention, and the information given to me was a big help.” This shows how important the task of raising awareness is.

We had amazing support from the Convention organisers and from the magicians themselves.

One magician, Phileas Flash invited us to his balloon workshop as he made a life size model of one of the organisers who is affected by NF1, giving us a platform to directly present the charity on stage.

We were also honoured by a visit to our stand by Uri Geller.

Our community had special guest tickets for the UK Family Entertainer of the Year Event, which was attended by the Paterson family, who have been phenomenal supporters of Nerve Tumours UK. Also attending were St Vincent's School for Sensory Impairment and Other Needs, so this was another opportunity to recognise the importance of issues surrounding Neurofibromatosis and other genetic conditions.

Our main fundraising activity was a raffle for a Golden Ticket for the 2021 Blackpool Magic Convention and we sold a total of 501 Raffle tickets. 

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Registered Charity Number: 1078790 and SC045051

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Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

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Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

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Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

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NF2 Working Together: from a tentative diagnosis and beyond

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Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

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Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

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Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

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Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

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Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

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