Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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Shine a Light on Neurofibromatosis
World Neurofibromatosis Awareness Day - May 17th. Help us raise £ 26,500 for 26,500 people in the UK who have nerve tumours.
Read More![](https://nervetumours.org.uk/images/made/images/common/jem-nd-richPage-Preview-800-x-500-px_800_600_s_c1.png)
Jem Musselwhite and Rich White are fundraising by walking the Pilgrims’ Way
Jem and Rich are walking more than 100 miles to raise money for Nerve Tumours UK. Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Rachel-Page-Preview-800-x-500-px_800_600_s_c1.png)
Meet Rachael
Rachael Reynolds is a 43-year-old mother of four, living in Huddersfield. She recently appeared in the Channel 5 programme,
Read More![](https://nervetumours.org.uk/images/made/images/common/Beijing-MarathonPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Our Two Marathon Runners from China
Meet our two runners from China who like to partake in marathons across the globe.
Read More![](https://nervetumours.org.uk/images/made/images/common/Andrew-Leak-MarathonPage-Preview-800-x-500-px_800_600_s_c1.png)
Andrew Leak is set to Complete 10 London Marathons!
Andrew Leak is about to complete his mission of running 10 London Marathon's! Find his press release here
Read More![](https://nervetumours.org.uk/images/made/images/common/Gemma-Barnes-Page-Preview-800-x-500-px_800_600_s_c1.png)
Meet Gemma
Gemma Barnish has NF2 and has recently gotten married, find out more about her intriguing life here:
Read More![](https://nervetumours.org.uk/images/made/images/common/KIDZ-ADULTZPage-Preview-800-x-500-px_800_600_s_c1.png)
Kidz to Adultz Exhibitions
Kidz to Adultz offer a number of free exhibitions across the year to offer adivce and information on living with a disability
Read More![](https://nervetumours.org.uk/images/made/images/common/CARPage-Preview-800-x-500-px_800_600_s_c1.png)
Centre for Appearance Research at UWE want you to help test online support for people with Nerve Tumours
Centre for Appearance Research are looking for people with Nerve Tumours to test their new online support
Read More![](https://nervetumours.org.uk/images/made/images/common/support-specialPage-Preview-800-x-500-px_800_600_s_c1.png)
Support Specialists Challenges and Ambitions
Read more on both Rachel and Carolyn's views on their ambitions and challenges faced as Support Specialists
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved