Share your Story
We want to hear your stories!
Over the years, so many of you have shared your stories with us.
Your stories help us to raise awareness and give readers a better understanding of NF, the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). They also help others learn how people deal with NF, from the early symptoms to diagnosis and living your life to the fullest, and are extremely valuable in uplifting others with the condition, showing that having NF doesn't define you.
When submitting your story, please include at least one photo of you, to make your story page even more engaging.
For some inspiration, here are a few of the stories we first shared on our website:
You will find all the many stories we have shared in our News section.
Kieran's Story
"My advice is to just stay positive, live your life as you would do." Kieran is an athletic, upbeat, motivated young man. Have a read of his inspiring story and how he has not let his NF1 hold him back.
Read Kieran's story
Emily's Story
Emily Owen is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed with NF2. Have a read of her inspiring story here
Read Emily's story
Olivia's Story
Read Olivia's amazing story, and brave attitude as she lives her life to the fullest despite her NF. “NF is part of me – without it I don't know who I'd be, and I am happy with the person I am”
Read Olivia's story
Gabriella's Story
“That's why I am proud of my NF because it's part of who I am and I have learnt to accept it.” Have a read of Gabriella's story a brave kind and, intelligent young girl who takes her NF in her stride everyday!
Read Gabriella's story