Vila Vendetta's fundraising page
17 May 2022
Other
Im 31 and have neurofibromatosis type 1, i was diagnosed at a young age and was in and out of regular hospital visits.
I was bullied very badly as i had a very large growth on my left side torso and had multiple surgeries on it to remove it due to the bullying. At 9 i told a Dr i wanted it gone so badly i would cut it off with a kitchen knife if they didnt do anything.
I had multiple complications from these surgeries and had my heart stop multiple times, had drs gaslight me and my mum as a 9 year old!! luckily my mum actually listened to me or i might be dead. Had drs gaslight me as a adult through the years also.
I know have a daughter who is 6 and luckily so far she shows no signs of having nf however in pregnancy my nf got worse and now i’m on large amounts of painkiller for the pain.
I want to help bring more awarness to nf and help the charity
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