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Steve Brine MP helps spread awareness for Nerve Tumours UK

06 June 2019

Steve Brine MP meets the Burbridge Family 

Steve Brine MP recently met with one of our most active families in the way of fundriaising and spreading awareness for Nerve Tumours UK, all in the aid of young Lily (NF1). Mum Sarah has recently ran her first half, while Grandad Jem recently walked more than 100 miles along the Pilgrims' Way, and Dad Pete is set to take part in the Prudential RideLondon this August, in which you can sponsor him here

Now they have recently contacted and met with MP Steve Brine who has exclaimed at how delighted he is to help spred awareness for Neurofibromatosis. 

"“Neurofibromatosis is classed as a rare condition but it’s sadly not as uncommon as people think. We urgently need to raise its profile and work with related charities, as well as researchers working in this area, to start developing treatments for children like Lilly.” "

– Steve Brine MP

The Burbridge Family with MP Steve Brine

Read the full article here

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Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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