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Revisiting the GCSE class of 2020

15 September 2025

As we start a new academic year, we hear from Ella, Thomas and Noah.

We first contacted them in summer 2020, to find out how they got on with their GCSEs.

This was during the height of the pandemic, when all GCSE and A-level exams were originally cancelled. The government and Ofqual subsequently reassessed that decision, with grades based on mock exams, an algorithm based on schools' previous performance in each subject, and teachers' estimated grades. This resulted in an extremely stressful time for all students waiting for their results.

You can read their updates in full below

2020

 

We revisited our students two years later, in autumn 2022 and reported back on their achievements and plans for the next few years.

 

2025

Five years on from that initial contact as they awaited GCSE results, we catch up with Ella, Thomas and Noah to find out what they are doing now.

 

Ella

Ella has NF1

2025

Going to university was far from a straightforward step for me – it was a challenge that demanded a great deal of planning and organisation. Before I even arrived, a detailed care package had to be arranged to ensure my needs were met. This wasn’t just a one-off set-up. My parents had to travel down regularly to help with essential tasks, such as food shopping and cleaning my flat. Their support was invaluable, but it also meant I wasn’t able to be as independent as many of my peers.

What made matters more difficult, was that not all lecturers took the time to read or fully understand my care package. This lack of awareness sometimes left me feeling frustrated and overlooked, as though the effort and thought that had gone into arranging my support were invisible. I often found myself having to explain my situation repeatedly, which was exhausting on top of my academic work.

At times, my mental health deteriorated under the strain. Balancing my studies, daily life, and the need to constantly advocate for myself was overwhelming. However, with the unwavering support of my family, friends, and the care package in place, I was able to persevere. Their encouragement and practical help gave me the strength to carry on, even when things were at their most challenging.

Despite all of this, I have no regrets about going to university. For me, it was about far more than earning a degree – it was a journey of learning to adapt, developing resilience, and becoming more mature. Looking back, I can see not only the difficulties but also the personal growth that came from facing them head-on

2022

I joined Warriner 6th Form College in Oxfordshire to do 3 A-levels, as we were moving to the area. I had visited a couple of times and it looked a friendly school. Sadly, looks can be deceptive, as it proved quite a challenging environment for me to navigate with physical and mental health issues. I had an Education Health Care Plan, but school didn’t feel it was post 16 appropriate so didn’t follow it, which has impacted on my grades and wellbeing.

On a positive, I have really enjoyed and done well in Sociology, a subject I hadn’t really thought of doing before. Having a fresh start in Oxfordshire has been good for my mental health in respect that no one knows me and have no preconceptions. I’ve made good friends with our neighbours Joanne and Oliver; they are very positive role models. Oliver is a mentor to girls in STEM (Science Technology Engineering Maths). I’ve completed my 3 A-levels in Drama, Sociology and Computer Science, the latter proving the hardest, and so I’m not confident about passing it. Well, 18th August, I’ll know how I did. I don’t think I could have worked any harder or prepared more than I did.  

September, I’m starting an Accounting and Finance degree at Anglia Ruskin University in Chelmsford. I’m in a good position, as I have an unconditional offer, so not reliant on my exam grades. To be fair, I’m excited about starting university, but scared about living independently. I’ve got to give it a try though. Ideally, when I complete my degree I’d like to specialise in Forensic Accounting. The ‘Post Office Scandal’ some years ago really intrigued me, especially as it was down to accounting to solve the cases of the Post Office staff being sentenced wrongly.

2020

Mum, Diane: Ella has always persevered to keep up with her peers and her tenacity has paid off. She loves drama, maths and reading murder mystery novels while listening to very loud music! Hopefully, her predictive grades will allow her to access A levels in Geography, Drama, Business Studies and AS core maths. 

 

Thomas

Mum Catherine has NF1, Thomas has a different genetic condition

2025

For my third year of university, I was successful in being selected for a placement at Fulham FC, working in their Academy Operations Management Department. I worked within the Academy with all age groups up to, and including, the under 21's; arranging the different training programmes; supporting & assisting with skills, growth, & development; organising the itineraries for all of the home matches; also organising itineraries & transport for the away games against all of the different FC Academy players within the League. I really enjoyed my year there, & gained so much experience. I am looking forward to returning to Loughborough University in September 2025, for my 4th and final year.

2022

I really enjoyed 6th Form College and am pleased to have completed my A-Levels. I'm looking forward to going away in the summer with my friends, before hopefully starting university in September doing a BSc in Sports Management. In the future I aspire to be involved in the global business of sport, especially in the football industry.

2020

Mum, Catherine: Thomas is the kindest, funniest, & most loving supportive son. I feel so blessed, as he makes my life better when I'm struggling with my NF & chronic pain. He loves football & music, & in September will be going to college to take 3 A-Levels. He's also been accepted by a football academy & will start their programme in September alongside his A-Levels.

 

Noah

Noah has NF1

2025

I can't believe I've finished university. It was difficult at times but I kept going and trying my best. I managed to get a 2.1 in Film and Screen, I am extremely proud of myself for all my hard work. I would like to get a job in pre-production in film, TV, or theatre. I'm particularly interested in the design and making of props. At the moment, I'm just trying to get some work so I can gain experience for my C.V. Having NF1 sometimes makes things harder but I want to show people that you really can achieve things in your life.

2022

It has been a couple of crazy years again, but BTEC’s and A-Levels are finished. In September I'm planning on doing a BA degree in Film Studies at BIMM Institute in Birmingham. I'm really interested in the field of cinematography, and hope that one day I will be behind the camera of a blockbuster. This summer I have been given an opportunity of being a camera assistant at the Commonwealth Games and am hoping to cover the badminton at the NEC. I'm really excited not just because of the work involved, but to be a part of the Games in my home city.

2020

Mum, Sarah: Noah is an amazing and kind young man. He loves playing his video games, watching and reading anime and anything Japanese. He is going to sixth form in September and will do A-level photography and BTECs in computer, media and sound engineering.

Masterclasses in NF: Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Prof. Dr. Berthold Pemp

OT Sabine Koinig

Masterclasses in NF: Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Assoc. Prof. Dr. Gregor Kasprian

Dr. Hector Salvador, MD

Masterclasses in NF: The Patients’ Perspective: A Masterclass on NF Care Held by NF Patients

Masterclasses in NF: Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

 

Michel Kalamarides MD

Masterclasses in NF: Management Of Plexiform Neurofibromatosis in NF1- Rianne Oosterbrink, Justus L Groen, Karine Lascelles

Masterclasses in NF1: 1.Management Of Plexiform Neurofibromatosis in NF1

Rianne Oosterbrink MD

Justus L Groen MD

Karine Lascelles MD

Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome

Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: Rare NF1-Associated Tumors in Adults

Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis

Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital

Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

Gareth Evans, MD, University of Manchester, UK

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis

David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

NF2 Working Together: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

Masterclasses in NF: Surgery in NF2

Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches

Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

Masterclasses in NF: NF1 Pediatric Management

Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond

Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

Masterclasses in NF: NF1 Orthopedic Manifestations

Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas

Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology

Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

‘Neurofibromatosis 1 in the 21st Century’

Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK