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Register to attend our NF1 information day in Carlisle

21 May 2019

Sign up here to attend our NF1 information day in Carlisle!

The day is designed so that our specialists can give you information and insight about NF1 and what help is available. You will also be able to ask any questions to the specialists in attendance on the day, as well as meet up and talk to others within the NF1 community in what will be a safe and confidential environment.  

Our NF1 awareness day will be taking place at the Crown and Mitre Hotel Carlisle on Saturday 13th July 2019,   

The address of the hotel is: Crown & Mitre Hotel, English Street, Carlisle, Cumbria, CA3 8HZ*

This day is funded by the National Lottery Community Fund

The day will commence with registration at 9:30am and will finish at around 15:00. There will be parking available on site on a first come first serve basis and the hotel is a short walk from Carlisle station. 

The day will involve a number of guest speakers including:

TALK: Delivering intergrated and holistic Care For Patients With NF1 Rachel Jones- Specialist Neurofibromatosis Nurse

TALK: How to Claim Benefits/PIP For Neurofibromatosis Type 1 with Julie Ann Evans- Disability Benefits Consultant

TALK: How to Manage your NF1 with Dr John Ealing, NF1 Specialist, St Mary’s Hospital, Manchester

TALK: Pain Mangement and Mindfulness with Neurofibromatosis Type 1 with Mary Thomas- Clinical Nurse Specialist at Guys St Thomas Hospital. 

There will be a number of  breaks with complimentary snacks, including a free lunch as well. 

To register either fill out the PDF attached below and send it to us, or complete the online typeform. (Registration is now closed)

The day it self is completely FREE however you will be charged a £10 admin fee if you do not attend. If you cancel before 16/03/19 then this fee will not be charged.

To cancel please email either or


For a full schedule of the day please click on the download below

You can now view all talks from the day on our YouTube Channel which you can find by clcikign on the link below: