Celebrating Trustees Week

Meet the Trustees

At Nerve Tumours UK, our Board of Trustees plays a vital role in steering the charity towards its goals, ensuring that we provide meaningful support to those affected by NF: the new medical group name for Neurofibromatosis Type 1 (NF1, NF2-related- Schwannomatosis (NF2) and Schwannomatosis (SWN). Our trustees bring their diverse expertise and experiences to shape the strategic direction and governance of the charity, helping to make a real difference to the lives of our community members. Being a trustee at Nerve Tumours UK is a role filled with purpose. Trustees are responsible for overseeing the charity’s direction, ensuring that we meet our mission, and helping us remain accountable to our supporters and the wider public. While the role requires commitment, it also offers a unique opportunity to apply one’s professional skills to a charitable cause, learn new skills, and be part of an incredibly rewarding journey. Here’s an introduction to our dedicated trustees and what their work means for the future of Nerve Tumours UK.

Our Trustees
 

Richard Goode is a Fellow of the Royal Institution of Chartered Surveyors and wasthe Managing Director of Fletcher King PLC for 15 years and is now a Non-ExecutiveDirector of the company. His expertise in commercial property fund managementbrings a valuable perspective to the charity’s financial oversight. Richard, based in Surrey, has a personal connection to our cause as his eldest son has NF1. His dedication to the charity goes beyond professional commitment, driven by a personal desire to improve the lives of those with NF.

With over 25 years of experience in the Social Care Sector, Jonathan Bruce offers extensive knowledge in care services and business management. Jonathan, currently the Chairman and Owner of Fitzgerald Fostering, previously served as CEO of Sodexo Homecare. His commitment to Nerve Tumours UK is inspired by his son Henry, who was diagnosed with NF1. Through both personal and professional channels, Jonathan actively supports the charity's mission, providing guidance and fundraising support.

Professor Rosalie Ferner, a Consultant Neurologist at Guy's and St.Thomas'; Hospital, brings profound medical expertise to Nerve Tumours UK. As former Chairof the charity's Medical Advisory Board and a longstanding leader in NF services, she has championed holistic, multidisciplinary care for individuals with NF. Her specialist focus on tumour suppressor conditions and her commitment to advancing medical understanding and support systems are invaluable to the charity's mission.

Barrister Michael Fry, who specialises in planning, regulatory, and public law, brings a deep understanding of public affairs and charity law. His son, Freddie, was diagnosed with NF1 as a baby, strengthening Michael’s resolve to advocate for the NF community. His experience as a former military press spokesperson and his background in social and political sciences further enrich his contributions, particularly in the areas of advocacy and fundraising.

Rohan Chanmugam, Founder and Chair of Clevercoms Ltd, specialises in corporate strategy and financial management. His experience with global organisations and expertise in telecoms, media, and technology offer Nerve Tumours UK fresh perspectives on innovation and strategic growth. As a Freeman of the City of London and Liveryman of the Worshipful Company of Glass Sellers of London, Rohan brings an extensive network and insights that are crucial for the charity’s future.

Professor Meena Upadhyaya, an esteemed researcher in Cancer and Genetics, has been part of the NF1 research community since 1986. Her vast body of work, with over 200 published papers and numerous book contributions, positions her as an authority in the field. Passionate about supporting NF1 families in Wales and beyond, she brings a valuable scientific and compassionate lens to her role, continuously striving to improve the quality of life for NF patients.

Matt Jones, a Director and Deputy Fund Manager at M&G plc, holds significant expertise in structured finance. Inspired by his younger brother with NF1, Matt has supported the charity through fundraising initiatives and is dedicated to advancing the charity’s objectives. His background in mathematics and finance provides a solid foundation for his role as trustee, where he focuses on helping the charity make sound financial decisions to secure a sustainable future.

What It Means to Be a Trustee at Nerve Tumours UK

For Nerve Tumours UK, trusteeship is more than a governing role; it is a partnership between individuals who bring their unique strengths to our shared mission. Trustees are central to the success of our charity, ensuring that we are equipped to support our community and meet our organisational goals. Their responsibilities include:

•  Strategic Oversight: Trustees are responsible for setting the charity's direction and ensuring it remains aligned with our mission to support the NF community.
•  Resource Management: They ensure that the charity’s resources are used responsibly and effectively, from financial assets to human resources.
•  Legal and Ethical Compliance: Trustees ensure that Nerve Tumours UK adheres to legal requirements and operates ethically in all activities.
• Advocacy and Networking: By leveraging their networks and expertise, our trustees help expand the charity’s reach, attract new supporters, and secure partnerships that benefit our mission.
• Emotional Connection: Many of our trustees have personal connections to the NF community, which brings added empathy and dedication to their roles.They understand the challenges faced by those with NF and are motivated to make meaningful change.

The Value of Trusteeship: Beyond the Boardroom

Being a trustee for Nerve Tumours UK is as fulfilling as it is impactful. Our trustees report that their roles bring immense satisfaction, from contributing to a greater cause to seeing the real-world impact of their efforts. Many have also noted personal growth, including enhanced leadership skills, greater confidence, and a sense of accomplishment.

According to statistics, trusteeship often boosts happiness, confidence, and professional development. At Nerve Tumours UK, we see these benefits firsthand, as our trustees not only shape the charity’s future but also find renewed purpose in their own lives. By supporting individuals and families affected by NF, they make a lasting difference that reaches far beyond their professional expertise.

A Special Thanks to Our Trustees

At Nerve Tumours UK, we are deeply grateful for our trustees’ commitment. Their leadership, compassion, and hard work enable us to grow, innovate, and continue making a positive impact on the NF community. As we look to the future, we know we are in safe hands with a Board that is as dedicated to our mission as we are. Together, we are building a brighter, more hopeful future for everyone affected by NF.