Helpline 07939 046 030

Noreen’s Story: Reflection on Lockdown

15 December 2020

Reflection on Lockdown

Hi, my name is Noreen Elizabeth Steenson. I am 46 years old and I have Neurofibromatosis Type 1. Over the years I have had many surgeries to remove my tumours and this year was no different. I had one surgery on my right hand in March and one recently in September on my head, neck and spine, I did not like being in the hospital.

I am the only one in my family who has NF and I currently live alone in my bungalow, which has been hard in Lockdown. I usually go to my day centre to socialise twice a week. I call this my safe place as no one looks at me differently, it’s nice to have this community as we are all there for different reasons but can support each other. Unfortunately, due to covid19, my day centre has been closed and I haven’t been able to see my friends and family. Luckily, my neighbour, Lena has been a lifesaver as we are able to chat to one another safely. I also have a lot of friends on the internet, specifically in the Nerve Tumours community who are always there to support me as well as my sister, my nephews Tiarnan, Alfie and Brother-in-Law Lee, who I spoke to this year mostly over the phone. I hope this will change in 2021 and things become more normal and I can see my friends and family again.

Filter News

Filter by Date
Category
Reset

Student Voice Prize 2021

The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!

Read More

Centre for Appearance Research - Parent Support Materials Study

The Centre for Appearance Research is doing a study on parent support materials - can you help?

Read More

Centre for Appearance Research - YP Face IT

YP Face IT offers online support for young people with conditions or injuries affecting their appearance

Read More

Counselling support from Changing Faces

Changing Faces - Counselling support: confidential one to one support sessions for people with a visible difference

Read More

Tim’s Story: Living With Neurofibromatosis – it’s a family thing

Tim tells us how Nerve Tumours UK proved to be an invaluable resource and support to him and his family as he was growing up

Read More

Dalvinder’s 100km Ultra Challenge for NF

Dalvinder on the 100km Ultra Challenge Thames Path walk to raise money for NF

Read More

Esme’s Summer of Slides

Esme's Summer of Sliding for NTUK!

Read More

Diana’s One Month of Rowing for Neurofibromatosis

Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community

Read More

Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

Read More