Helpline 07939 046 030

Noreen’s Story: Reflection on Lockdown

15 December 2020

Reflection on Lockdown

Hi, my name is Noreen Elizabeth Steenson. I am 46 years old and I have Neurofibromatosis Type 1. Over the years I have had many surgeries to remove my tumours and this year was no different. I had one surgery on my right hand in March and one recently in September on my head, neck and spine, I did not like being in the hospital.

I am the only one in my family who has NF and I currently live alone in my bungalow, which has been hard in Lockdown. I usually go to my day centre to socialise twice a week. I call this my safe place as no one looks at me differently, it’s nice to have this community as we are all there for different reasons but can support each other. Unfortunately, due to covid19, my day centre has been closed and I haven’t been able to see my friends and family. Luckily, my neighbour, Lena has been a lifesaver as we are able to chat to one another safely. I also have a lot of friends on the internet, specifically in the Nerve Tumours community who are always there to support me as well as my sister, my nephews Tiarnan, Alfie and Brother-in-Law Lee, who I spoke to this year mostly over the phone. I hope this will change in 2021 and things become more normal and I can see my friends and family again.

Filter News

Filter by Date
Category
Reset

The International Rare Disease Showcase 1st – 3rd February 2022

The International Showcase is a unique & important event, with interactive sessions taking place from 1st-3rd February 2022

Read More

Grace’s NF1 story - Nothing stops me

Grace tells us how her NF1 hasn't stopped her from being active and achieving her goals

Read More

Mia’s NF1 story

Bridie & Warren describe their 17 month old daughter Mia's diagnosis with NF1

Read More

Richard & Diana’s 1,000,000 metre new rowing challenge

Diana & Richard have taken on a 1,000,000 metre rowing challenge in 100 days to raise funds & awareness

Read More

A Message from our Charity Director

A message from Karen, our Charity Director, on looking forward to a special 2022

Read More

Childhood Neurological Conditions Survey Part 2

Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis

Read More

Study - Resilient Youth with NF

Online Harvard Study for 12-17 year olds

Read More

Owen’s Ball 2021

The Owen Family held their annual black tie fundraiser for NTUK

Read More

Graham’s Super Nine Shines A Light on NF

Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK

Read More