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NF Awareness Day Fundraiser at Fyling Hall School

05 June 2023

Bea has NF1. On 17 May, World NF Awareness Day, her school held a special awareness & fundraising day for NTUK.

Bea, with Head Teacher Amanda

Bea, with mum Vicky

Pupils & teachers dressed up in blue & green, the colours of NF

and kept the blue & green theme going

with special dinosaur cookies

"Bea is very well supported by Amanda and the teachers and pupils of Fyling Hall School and it is fantastic that everyone has become more aware of Neurofibromatosis and the difficulties the condition can create. "

– Vicky, Bea's mum

Thank you to Head of Junior School Amanda for organising the event.

Well done to all who took part and helped raise awareness of NF. Your efforts are very much appreciated by NTUK and the NF Community.

Shout out to parents and carers - please ask your child's school to follow Fyling Hall School's example and help raise awareness. 

iNForm Your School

Help us reach as many schools as possible and in so doing make sure each child with NF gets the education they deserve

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Shine A Light 2023

The Shine A Light 2023 campaign had 162 buildings around the UK & the Republic of Ireland lit up in blue!

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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