04 August 2022
Molly has NF1, she is very happy and loud, and is learning how to walk.
Alfie is her very proud brother, and they adore each other.
Molly has lots of Cafe au Lait marks but no other symptoms yet. She participates in the Eden Study at Manchester University, which looks at how infants with NF1 develop.
A few months ago, I had a worry about Molly's diagnosis so I spoke to Rachel, Specialist NF Nurse, who was so kind and put me at ease.
Although Molly doesn't need any support right now, she may require help in the future so we want to support Nerve Tumours UK so that they can continue providing their services to other people who have Neurofibromatosis.