26 October 2022
A single case, experimental design study of an online mindful-parenting programme, for parents or carers of children living with a visible difference.
Why are we doing this study?
Some parents or carers of children living with a visible difference can experience heightened stress due to the associated challenges. Parents or carers views of the child’s visible difference and their responses to the child are important. Mindful parenting approaches have been found to help reduce stress or distress for parents of children with disabilities, physical health problems and skin conditions.
Who can take part?
Parents or carers, of a child aged 4-16 years living with a visible difference, are invited to take part. Specifically, we are looking for parents or carers who are experiencing some stress, worry or concern around their child’s visible difference. This study will be completed with a small number of participants (around 5-10).
What will I have to do?
To check the Two Hearts mindful parenting programme is right for you, an initial interview will be completed. Taking part will involve completing an online mindful parenting programme over six weeks. Plus, completing four group support sessions during the programme via videoconferencing. The support sessions will be scheduled when you start the programme, at week 2, week 4, and at the end of the programme (week 6).
Over the twelve-week study period you will be asked to complete four questionnaires about stress, mindfulness, and your child’s wellbeing. You will also be asked to answer two questions about stress, regularly over the twelve-week study period. You will also be asked to provide regular feedback about how much time you have spent using programme materials and doing home practice.
Finally, you will be asked to complete an exit interview with the researcher to discuss your experiences of taking part in the study.
What are you looking to find out?
We hope to learn whether the Two Hearts mindful parenting programme is helpful for parents or carers of children living with a visible difference. We also hope to learn whether parents or carers find completing the online programme possible and practical. Finally, we hope to hear parents and carers' views about the programme.