Meet Helen
01 November 2023
Specialist NF Support Network
Helen Tomkins
I am the Specialist Advisor in the Devon and Cornwall region, for individuals with inherited tumour predisposition syndromes including Schwannomatosis and Neurofibromatosis.
The Schwannomatosis service consists of a multidisciplinary team of medical professionals with specialist knowledge and extensive experience. We are a satellite service for Oxford and work with individuals who have Schwannomatosis , including NF2-related-Schwannomatosis.
We run our clinics at Derriford Hospital in Plymouth, on the second Thursday of every month and the first Thursday for our new patient appointments. In addition, I run weekly follow up clinics for those with a confirmed diagnosis.
On a personal level, I thoroughly enjoy my role as the Specialist Advisor. This involves supporting individuals and co-ordinating the care for my patients. It is fulfilling to be supporting individuals as part of their journey.
I am lucky to work with a dedicated and knowledgeable team who are willing to go the extra mile.