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Medical Photography of dermatological conditions - research

13 June 2022

Nicholas is a 4th Year Medical Student at Cardiff University, and with his supervisor Dr Jui Vyas, he is currently working on a project titled “Medical Photographs: Patient perceptions of medical photography of dermatological conditions”.

Dermatology is a visual specialty, and images of dermatological conditions are important in the education of future clinicians in the specialty.

The majority of images of dermatological conditions in major UK textbooks are of Caucasian patients resulting in an incomplete picture of dermatological conditions in various skin tones, as brought to the attention of many by a recent petition (https://www.change.org/p/gmc-medical-schools-must-include-bame-representation-in-clinical-teaching).

This pilot study is an attempt to understand some of the patient factors behind the reasons for inadequate representation of patients of skin of colour in dermatology images.

In addition we would also like to determine if there are any other factors that influence a patient’s consent to medical photographs of their dermatological conditions. Therefore, the aim of the study is to determine if patient demographics influence perception of medical photography of dermatological conditions.

 

The study will contain a short questionnaire made up of 4 headings, including questions asking participants: information regarding their sex, age, ethnicity, information relating to socio-economic status, and religion; and their opinions on medical images being taken of their dermatological conditions in different scenarios.

These questions will be asked to find out if these different factors influence patients’ perceptions on consenting for medical photographs being taken of their dermatological conditions, or if it influences whether health care professionals will request consent from patients.

The questionnaire will take approximately 5-10 minutes to complete. The questionnaire will be completed online, and the link can be found here:

Please note that the deadline for to complete the survey is Sunday 19th June 2022.

If you have any further questions, please contact Nicholas Phillips PhillipsNL5@cardiff.ac.uk.

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière , Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

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Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK