07 May 2019
Hi my name is Luke and I have NF1.
NF is very close to my heart as my brother died when I was very young.
I'm one of the lucky ones as NF has not really affected me medically enough to upset me, I have just had a few lumps removed here and there.
Probably the worst thing that's ever happened to me was that when I was younger I was called names at school due to the lumps, bumps and marks on my body.
"My son and daughter also have NF1 and I will make sure they grow up proud of their NF and that they are very special!"
They are my two NF Ninjas 😊