Diet, fatigue and NF1

Tired of feeling tired???

Our medics are often asked questions in clinics about diet, and if there are any food types that will help with NF1.

Many children and young people diagnosed with NF1 continuously feel tired, and so the team at St Mary's in Manchester headed by Dr. Grace Vassallo, have joined forces with Victoria Whiteley, Advanced Clinical Practitioner in Ketogenic Therapies at Royal Manchester Children's Hospital, to research whether diet and nutrition is linked to fatigue. 

To complete their research they need your help. If you are the parent or carer of a child or a young person under 18, or a young person under 18 yourself, and are members of the NF1 community from across the UK, we would like to invite you to join the project, by registering on the Typeform below. 

It will only take seconds to join up, but your help with this research will potentially lead to an improved quality of life for children, and ultimately adults, diagnosed with NF1.