23 September 2021
This research has closed. You can download the research findings here:
Are you a parent or carer of a child with Neurofibromatosis?
Maia Thornton, a PhD student from the Centre for Appearance Research, is looking for parents and carers of children aged 0-18 years to provide feedback on some parent materials.
These parent support materials have been designed with parents of children with appearance affecting conditions and injuries, and professionals who have experience supporting these families.
Parents and carers will be asked to review support materials and answer a short survey to tell us about their experience, and anything they feel could be improved.
Anyone who completes the survey will be offered the chance to enter into a raffle to win a £50 Amazon voucher.