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CAR Relationships study

19 July 2022

Researchers at the Centre for Appearance Research have developed support materials for adults with appearance-affecting conditions, focussed specifically on intimacy and romantic relationships.

They are now looking for individuals with an appearance-affecting condition, like Neurofibromatosis, to review and provide feedback on these support materials. This will involve listening to/reading some pilot versions of the support materials and responding to a short feedback survey to let them know what was good and what could be improved.

If you have Neurofibromatosis, are over 18 years old, have a good understanding of spoken/written English, and are currently, or have been based, in the UK, they’d love to hear from you!

Anyone who completes the survey will be given the opportunity to win a £50 Amazon voucher, as a thank you for their time.

If you have any questions, please email