06 June 2022
My son Austin, who is 7 years old, was diagnosed with NF1 at the age of 4.
We had never heard of it before and would like to raise awareness of the condition. When Austin was 5 he was really ill, where we had to have paramedics out and they did not know what Neurofibromatosis was.
Austin has behaviour issues and we think he's got ADHD. He has no tumours but is just full of cafe au lait spots.
"Mecca Bingo in Swansea hosted a charity night on 25th June to raise money for Nerve Tumours UK, raising money all week. I wanted to do it for Nerve Tumours UK, as without charities like you, there would not be the support for people like us."
Mecca Bingo had offered 8 of us to play free bingo as we were supporting Austin, helping us to raise money for NTUK and raise awareness of Neurofibromatosis, as part of their week long raffle.
The manager also did his bit to raise awareness, telling people about Neurofibromatosis, in support of the charity and the Neurofibromatosis community, as one of the bingo hall's staff members has Neurofibromatosis Type 2.
The family have received incredible support for Austin from local biker groups.