Adam’s Story

Adam's Story

To look at me, you wouldn't know that I have NF1 as all my issues have been internal.

I have always led an active life and had the mentality that my Neurofibromatosis was not going to define me or limit what I would attempt or achieve.

Then 9 years ago I had to have a series of operations due to a loss of function in my left leg and arm. I had a Medial epicondylectomy on both arms to improve nerve function and this was followed with a cervical lamenectomy on my C1-C2 vertebrae to debulk a Neurofibroma that was causing compression within my spinal column.

Luckily these surgeries were a success and I regained full function in my left side.

I have competed at the OCR world championships representing the UK for the last three years, I have run a 24 hour ultra race in Iceland, Set the fastest known time for a 123 mile trail in the UK.

Then last year I got the news that the C1-C2 Fibroma is growing back and I may need further surgery. They have told me that the surgery could risk me losing function in some muscles in my left arm.

The 268 mile Spine race, is a non stop self supported race along the entirety of the Pennine way in the height of winter. I am aiming to use this challenge as another opportunity to raise awareness for Neurofibromatosis and hopefully show others with NF that we need not let it define us.

I also liked the symmetry, From Spine (surgery) to Spine (Race).

She is also attempting to set the record for the route in 35 days or less. 

The real definition of a "power couple"!