Helpline 07939 046 030

Social Media Support

Social Media Support

We at Nerve Tumours UK understand that sometimes instead of talking to a medical professional you may just want to speak to someone in a similar situation to yourself. That is why we have devised two Facebook groups where you can interact and chat with your fellow NF warriors. All you need to do is like us on Facebook in order to join either group. 

Our first group is our community group where we have over 550 members of all ages. It's aim is to provide a safe space for everyone with Neurofibromatosis or Schwannomatosis to share their experiences and support each other.

Our second group, our community group for teens is only for people aged between 13-18. It is a great place to talk amongst yourselves, swap stories and ask questions to people who have had similar experiences to yourself.

  Both groups are completely free to join all we ask is that you adhere to our simple rules so that everyone can enjoy the group to its fullest!

1. No hate speech or bullying

Make sure everyone feels safe. Bullying of any kind isn't allowed, and degrading comments about things such as race, religion, culture, sexual orientation, gender or identity will not be tolerated.

2. Be kind and courteous

We're all in this together to create a welcoming environment. Let's treat everyone with respect. Healthy debates are natural, but kindness is required.

3. Do not seek or give out medical advice

This forum is not a source of medical advice. Please don't hesitate to visit our website www.nervetumours.org.uk and our Nerve Tumours UK Helpline is available Mondays and Tuesdays on 07939 046 030

4.Respect everyone's privacy

Being part of this group requires mutual trust. Authentic, expressive discussions make groups great, but may also be sensitive and private. What's shared in the group should stay in the group.

5. No promotions or fundraising asks

This is a Community space so please give more to this group than you take. No fundraising pages, advertising or promotional schemes please.


If you would lioke to join the group then please follow the links below. You can help support one another 😊