– Karen, Charity Director
"We need at least five more NF nurses - that’s an additional £125,000 a year, so let’s make a start and help thousands more people. "
Neurofibromatosis is a genetic condition which can be life-limiting and impairs the quality of life.
Some people inherit the condition, others are affected by a random mutation. Nerve tumours can affect any ethnicity, class or sex, and there are currently over 26,000 people in the UK who have one of the neurofibromatoses.
Our Specialists provide crucial medical and emotional support to patients with neurofibromatoses.
But whether you have access to one is a postcode lottery – there are large areas of the country with no provision of support. We need at least five more NF nurses so let’s make a start and help thousands more people.
Help us tip the odds by adding #OneMoreNurse.