Helpline 07939 046 030

Media Enquiries

We are always hoping to raise the profile of Neurofibromatosis, Schwannomatosis and those living with nerve tumours. 

We would like to invite members of the media, journalists, producers, researchers and whoever may find it of interest to download our media pack below. Go to our News section for the latest press releases. We can also facilitate interviews with medical advisors and individuals who have nerve tumours. Please don’t hesitate to get in contact by calling the head office on 020 8439 1234. 

Tel: 020 8439 1234


Download Media Pack

Resources for journalists and editors

Download Media Guidelines

Find our guidelines on how to correctly represent the Neurofibromatoses and Schwannomatosis in the media